Beginning May 28th, 2020, the ICN Exchange will begin the process of finalizing operations and shutting down. We will not be accepting new registrants or new pins from that date forward. The site will be available for downloading material until June 3rd, 2020, at which time the site will go off-line in preparation for archiving and storage. While not ready to share widely, a new collaborative platform is currently being piloted with select ICN groups. More details to come! It has been a great pleasure serving the ICN community for all these years and the ICN Exchange team wishes you all the best in your transition to new endeavors.

NASPGHAN/CDHNF Transition Tools by Patient Age

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bwilliams onto Self-Management

A wonderful tool to help families understand how to respond to symptoms of a flare. Similar to the asthma action plan, it offers a visual and description offered both in English adn spanish.

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jturner via rshonce onto self management

University of Iowa's Fall 2015 newsletter

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dawnebach onto Education

University of Iowa's Spring IBD Newsletter

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dawnebach onto Education

Pediatric IBD Depression Screening Toolkit: This toolkit is primarily intended for centers with fewer psychosocial resources, and it’s meant to be a starting point for you to deter

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Pediatric IBD Depression Screening Toolkit: This toolkit is primarily intended for centers with fewer psychosocial resources, and it’s meant to be a starting point for you to deter

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jsmith3 via smyers onto Patient/Family Resources

Pediatric IBD Depression Screening Toolkit: This toolkit is primarily intended for centers with fewer psychosocial resources, and it’s meant to be a starting point for you to deter

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smyers onto icncc16f

This handout was created by our IBD transition task force at Children's Mercy Hospital.

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shullmann via onto Coping with IBD

Examples of Medical Alert Cards for parents and patients.  Thanks Emily and the team from UCSF Benioff for sharing!

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TTodd via bwilliams onto Helpful info

Examples of Medical Alert Cards for parents and patients.  Thanks Emily and the team from UCSF Benioff for sharing!

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bwilliams onto Learning Lab 4

Take some time to look through the Self-Management Support Handbook and look at how to use this with your patients and families! An online version of it will be available soon!

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TTodd Check the NASPGHAN webiste. You may find some information there.

Thanks to the team from Mercy for posting their sick call algorithm!  This is a great tool to help gather consistent, critical information on phone calls.

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icnpatients via bwilliams onto Patient In-flare Resources

The NASPGHAN Foundation, in collaboration with the Improve Care Now Network (ICN), announces a new interactive self-management e-learning tool for your patients with Inflammatory Bowel Disease Join

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price.edwards via onto Transition Skills

Here's a family handout about Health Insurance. It's based on information in Florida, but you can update it based on your own state and personalize it for your clinic.

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TTodd via EPfeffer onto Helpful info

Here's a family handout about Health Insurance. It's based on information in Florida, but you can update it based on your own state and personalize it for your clinic.

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EPfeffer onto Social Work Resources

Thanks to the team from Mercy for posting their sick call algorithm!  This is a great tool to help gather consistent, critical information on phone calls.

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bwilliams onto Learning Lab 5

know your rights

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icnpatients via cjackson onto Patient Resources

Helpful Family Resources (3 of 3)

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icnpatients via cjackson onto Patient Resources

Tips and Tricks for improving medication adherence from Children's Mercy Hospital

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icnpatients via onto Patient Resources

Checklist given to parents / patients at time of diagnosis

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icnpatients via KAnderson onto Patient Resources

Family Centered Pre-Visit Planning tool for our families. So they can also prepare for the visit, we send this tool via secure email to our families 1 week prior manually.

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TTodd via SKenyon onto Helpful info

Here is example of the Transition Questionnaire we are using on a small sample population with a PDSA!!

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jscholl via cgessouroun onto Transition

2016 NWPGI Quarterly Newsletters

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2015 NWPGI Quarterly Newsletters

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2014 Quarterly Newsletters from NWPGI

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xarucngt onto Newsletters

Adherence Smart Phone Apps for patients

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bvire via onto Apps

Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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kfracchia via sarahnocito onto patient education

The NASPGHAN Foundation, in collaboration with the Improve Care Now Network (ICN), announces a new interactive self-management e-learning tool for your patients with Inflammatory Bowel Disease Join

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kfracchia via onto patient education

Checklist given to parents / patients at time of diagnosis

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kfracchia via KAnderson onto patient education

Our flyer to promote patient and parent mentoring among our IBD patients.

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kfracchia via wpatten onto Mentoring

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