Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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What is Smart Patients? And why are we partnering?

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Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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TTodd This is great. Love the shorter URL and flyer.

IBD education for teens and families.

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The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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atirloni That is awsome!! He did such a good job, very professional!  Now does he do this every night so he doesn't have to have it in during school?
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dwohl Thanks much. He drops the tube 5 nights a week and takes it out the next morning. He likes to take the weekends off and we and his doc agreed. Interestingly, Zac will only put the tube in on one...
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smyers Thanks David. (Here is the link to Zac's version! https://m.youtube.com/watch?v=4xwRrezN9Qw)

IBD education for teens and families.

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Alex Jofriet is CCHMC's amazing peer mentor. Alex created this amazing youtube video to share at our New Patient Orientation.

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This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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Thank you to the Noel Jacobs for starting this document and to others in the group who contributed! Comment here with feedback and questions.

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2015 Materials

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Smart Patients "rip-strip" flyer can be hung in clinic so parents and patients wanting to check it out can take the URL information with them.

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Medication Adherence Innovation Community team tools (April - July 2014)

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This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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Zac's new "I can drop my own NG tube!" video.
Step by step instructions on placing your own NG tube makes it easy.

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PSV's Depression Screening Swimlane

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smyers Thank you so much for sharing this Mark! Can you share which screening form you are using? And is the intent to screen all IBD patients annually? Do you have a sense of how easy it's been for...
tufanomd We are using the Center for Epidemiological Studies Depression Scale for Children (CES-DC). Our goal is to have a base screen and to follow up with those who have a positive screening. We will...
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smyers Thanks Mark - keep us posted. Will be anxious to hear if others adapt some of these ideas their center's work.

Checklist given to parents / patients at time of diagnosis

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Zac's new "I can drop my own NG tube!" video.
Step by step instructions on placing your own NG tube makes it easy.

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This discussion thread started by e-mail, but as I saw a gold mine of ideas develop, asked the RDs if we could share here. Please use the comments to add to the discussion...

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This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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Bradpeds via mhmaddux onto Clinic Handouts

This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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Helpful Family Resources (2 of 3)

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Helpful Family Resources (1 of 3)

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sabailey via cjackson onto SABAILEY

IBD education for teens and families.

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kathrynwilliams via pmorgan onto Educational Material

This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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IBD education for teens and families.

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This handout was created by our IBD transition task force at Children's Mercy Hospital.

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Blog post on Yale & Kale reviews use of app for medication adherence :: Mango Health: Keep Track Of Your Meds And Get Prizes

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Checklist given to parents / patients at time of diagnosis

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Methotrexate Health Topic

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IBD education for teens and families.

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